tag:blogger.com,1999:blog-156233903602254167.comments2023-06-25T05:30:17.420-04:00Best Dressed Baby in the ICUsuzmus27http://www.blogger.com/profile/17688394301974924146noreply@blogger.comBlogger107125tag:blogger.com,1999:blog-156233903602254167.post-82547477198317706272019-05-29T11:02:07.734-04:002019-05-29T11:02:07.734-04:00I am so proud of you for writing again❣️I am so proud of you for writing again❣️Linda Goodmanhttps://www.blogger.com/profile/16497874417994328681noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-65279040325923296492019-05-29T07:47:47.948-04:002019-05-29T07:47:47.948-04:00❤️❤️Lisa Lucierhttps://www.blogger.com/profile/07673279750946197074noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-3586589684937460592016-03-10T14:55:53.338-05:002016-03-10T14:55:53.338-05:00You have described me to a T. I have been in each ...You have described me to a T. I have been in each and every situation as recently as yesterday, I told my daughter ok I just need to sleep for 2 hours and then we can go to the Emergency room cause I dont want to fall asleep driving... Ours lives sure are something and the inappropriate humor well that is me for sureAnonymoushttps://www.blogger.com/profile/00130315267425498111noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-59217858116430433912016-03-08T18:41:28.230-05:002016-03-08T18:41:28.230-05:00Woke up to a "fed floor" once. Angels mu...Woke up to a "fed floor" once. Angels must keep us from being electrocuted as the feed drips into the power bar!<br />joycehttps://www.blogger.com/profile/00077035782133471952noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-31709420559254285402016-03-08T09:25:00.775-05:002016-03-08T09:25:00.775-05:00This list is awesome. Truth in every point. I lo...This list is awesome. Truth in every point. I loved the Norm reference! We walk into the hospital, and so many people stop and ask why Lo is there--by name. Crazy!Anonymoushttps://www.blogger.com/profile/05596934967653694518noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-41109111688632601702016-03-08T08:14:07.487-05:002016-03-08T08:14:07.487-05:00Ha ha ha - love this. Having just spent the weeken...Ha ha ha - love this. Having just spent the weekend in HDU with my son, I can certainly say this is the perfect list! Little Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-85897556603587353992015-11-11T08:24:35.592-05:002015-11-11T08:24:35.592-05:00The feeding tube extension is open or becomes unat...The feeding tube extension is open or becomes unattached and the food gets pumped onto the bed rather than into the gtube/stomach/child. This causes so much more work (changing bed and clothes, bath, making more food, etc)! Ugh. Not to mention catching up with feeds and guessing how much was lost. So frustrating. Kayli is Loving Life Trisomy Style!!!https://www.blogger.com/profile/06064497403668311159noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-5169884802981032912015-11-10T20:10:40.227-05:002015-11-10T20:10:40.227-05:00Word.Word.Three Fixed Heartshttps://www.blogger.com/profile/18009913677710260307noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-3097458775443064792015-03-08T20:15:22.567-04:002015-03-08T20:15:22.567-04:00Oh the love I have for this post...
We are beyond...Oh the love I have for this post...<br /><br />We are beyond the medical/ICU/house-like-a-hospital phase (thank goodness!) but for many years, I could relate so closely with most all of these items! Bed fed sucks! :)Anonymoushttps://www.blogger.com/profile/13927097159499432650noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-43224633889040347042015-02-04T06:56:50.964-05:002015-02-04T06:56:50.964-05:00Whenever I read Your Post Allways got Something N... Whenever I read Your Post Allways got Something New <br /><a href="http://descoonline.in/medical/icu-equipments.html" rel="nofollow">Icu Equipments</a><br />desco instrumentshttps://www.blogger.com/profile/05620386649640659900noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-52544000995066313902015-01-28T20:03:33.562-05:002015-01-28T20:03:33.562-05:00Im in tears reading this. My baby is in the picu w...Im in tears reading this. My baby is in the picu with Cornelia de lange, hes a month old and all I have control over is his outfits and swaddle blankets. I shop online for him and get all giddy when they come in the mail. I know exactly how u feel. I want them to know I care about his hygiene and wear. I think its a way we grieve all the horrible news we get about our children.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-60258325010191753712014-03-25T09:31:06.843-04:002014-03-25T09:31:06.843-04:00Very well said! My son is a healthy 16 year old, ...Very well said! My son is a healthy 16 year old, however, I have the greatest job in the world... I'm a pediatric nurse! To say that I have come to love, adore and respect the children I care for, as well as their families, is an understatement! I truly believe that God's silent, most powerful angels of all, are the parents of medically fragile children! I have never been more inspired than what I have been by the parents of "my kids", and I have no doubt thst I am a better parent today because of witnessing first hand exactly what all of you go through on a daily basis! Thank you for sharing your beautiful words! :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-67498437950899413942014-03-14T06:06:22.080-04:002014-03-14T06:06:22.080-04:00All I can say is that I love you.
Every one of t...All I can say is that I love you. <br /><br />Every one of these things go through my mind daily. It's hilarious to see it in text. And I like that it's hilarious. And that I can get a laugh out if it. # boutthathospitallife #basicallyanurse ��teal herself.https://www.blogger.com/profile/02892744104466303624noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-71244968244567688342014-03-13T18:53:06.015-04:002014-03-13T18:53:06.015-04:00What is a "fed bed"?What is a "fed bed"?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-75454954317093045882014-03-11T14:44:02.627-04:002014-03-11T14:44:02.627-04:00I laughed out loud for too long over this! Hahahah...I laughed out loud for too long over this! Hahahaha! Still laughing... This is my life! Thank you!Tyler Joneshttps://www.blogger.com/profile/13483964096665845943noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-556948867535420122014-03-11T01:46:39.330-04:002014-03-11T01:46:39.330-04:00I'm amazed that you connect with so many peopl...I'm amazed that you connect with so many people. Thanks for lightening their cares. I love you. Mothergmahttps://www.blogger.com/profile/04943739725177884680noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-50444361814450406962014-03-10T23:58:35.913-04:002014-03-10T23:58:35.913-04:00This is sooo True! My daughter has had seizures si...This is sooo True! My daughter has had seizures since she was 6mths old (now 19) we have fun names for them because you just can't be serious all the time.<br /> (tonic = nestea plung) (myoclonic = brain cramps) <br />(absence = over the rainbow (somewhere over the rainbow)) jamiejwi@gmail.comhttps://www.blogger.com/profile/17956477548289026896noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-89899273914898060652014-03-10T04:54:09.911-04:002014-03-10T04:54:09.911-04:00I relate to the ones about all the deliveries and ...I relate to the ones about all the deliveries and legitimate pharmacy and the one about being asked how do you do it (well that ones for my Mum) yet I am the one with the special needs. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-4521920162207518492014-03-10T00:42:45.721-04:002014-03-10T00:42:45.721-04:00The one meme up there, "I'm not a doctor,...The one meme up there, "I'm not a doctor, but I play one in real life"? I've been using something similar on my daughter's blog for a long time. :) http://eichefam.net/author/paul/Paulhttps://www.blogger.com/profile/11259356524651548764noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-17027050565130561322014-03-10T00:25:13.261-04:002014-03-10T00:25:13.261-04:00Been there, done that! Thanks for the laugh...it&...Been there, done that! Thanks for the laugh...it's reassuring to realize you're not the only one going through this stuff!Anonymoushttps://www.blogger.com/profile/07130903140917141987noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-76244391180885884722014-03-09T15:10:24.332-04:002014-03-09T15:10:24.332-04:00Just what I needed sitting here in hospital watchi...Just what I needed sitting here in hospital watching Doc try to figure out what wrong. Thanks for laugh. Can identify with all of them<br />Anonymoushttps://www.blogger.com/profile/12984521309541616856noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-11427746327057625972014-03-08T22:52:10.329-05:002014-03-08T22:52:10.329-05:00Love it! Each one I was nodding more and more ferv...Love it! Each one I was nodding more and more fervently. So I did go back to school to become a med professional (so that I'm no longer "just a mom" in the eyes of insurance, meds, the law ...) and I tell my friends "I am licensed to cure ... but if someone fucks with my kid I could seriously hurt them as well." And we laugh. I think I'm kidding. Hmm. thehorseenabler.wordpress.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-20668068825382439182014-03-08T21:26:31.232-05:002014-03-08T21:26:31.232-05:00I sure can identify not with a child but wit...I sure can identify not with a child but with a hubby ... did all that ........and would do it again if had to ....... hugs to all !!! AlmadenCathttps://www.blogger.com/profile/06882451348657649340noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-49002881216618207272014-03-08T12:32:56.307-05:002014-03-08T12:32:56.307-05:00This is great. Hilariously true. Although I prefer...This is great. Hilariously true. Although I prefer that none of us have to experience this, it's nice to see that I'm alone. I hang around several normal special needs parents who have it hard, but a complex child is an entirely different experience. An odd adventure to say the least.Anonymoushttps://www.blogger.com/profile/07460969815517486653noreply@blogger.comtag:blogger.com,1999:blog-156233903602254167.post-69069626723855057272014-03-08T08:56:34.983-05:002014-03-08T08:56:34.983-05:00A friend of mine sent me a link! I am also a speci...A friend of mine sent me a link! I am also a special needs mom. My daughter was born on 3/17/05. I have read the last 5 post and I can relate as if this was my life. My Annabel Grace was born with Full Trisomy 18.Cathyhttps://www.blogger.com/profile/00725698005835278265noreply@blogger.com