tag:blogger.com,1999:blog-156233903602254167.post6651257479868449169..comments2023-06-25T05:30:17.420-04:00Comments on Best Dressed Baby in the ICU: Living on the Edgesuzmus27http://www.blogger.com/profile/17688394301974924146noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-156233903602254167.post-43259993387770236012011-11-01T14:11:51.835-04:002011-11-01T14:11:51.835-04:00Hi, I found your blog as I am writing an article f...Hi, I found your blog as I am writing an article for Complex Child magazine about CdLS. My brother Adam was born with this in the late 70's and lived for six years. So much more is known today about it, and the kids have the opportunity to live rich, full lives. Being Adam's sister led me to eventually become a PICU nurse. I work with special needs kids every day and it's extremely fulfilling. Just wanted to say hi and thank you for sharing Ella's story.Inch by Inchhttps://www.blogger.com/profile/01732540712040941387noreply@blogger.com