Main

Main

Thursday, June 7, 2012

Where Did Everyone Go?

There's an amazing group for special needs families in the Atlanta area called FOCUS (Families Of Children Under Stress). They provide a myriad of resources, activities and support for families like mine.

We have attended a few events they offer for medically fragile children, but most often they visit us in the hospital. During one visit back in January, I was having a rough day. The isolation that this life can bring sometimes hits you like a ton of bricks. Sitting in a hospital room for weeks on end by yourself can bring you down, though I try and keep myself busy and not have too many pity parties. On this day I was having a party, and my friend from FOCUS suggested I write about it. So I did.

The article was published in their May-June 2012 newsletter: http://www.focus-ga.org/wp-content/uploads/2012/05/2012.may-june-newsletter.pdf

It was by no means meant to hurt anyone's feelings, or make anyone feel guilty. It is simply the truth about how I sometimes feel, and I think a lot of parents in our situation feel, and I wanted to write about it because the FOCUS newsletter is primarily meant as a resource for parents and it's encouraging to know that you are not alone.

Since the goal of this blog is to bring insight into what our lives are like, I decided to include the article here.