I also don't feel like I do anything most moms wouldn't do for their child in the same situation. And I wouldn't trade it. Is it completely overwhelming, emotionally draining and unbelievably exhausting? Well, yeah! But so is motherhood for any mom at times, just more often for us SNPs.
And when I say that I wouldn't trade it, I really do mean it.
I honestly don't wish for Ella Grace to be "normal" but I do pray for her to reach her fullest potential wherever that may be compared to what is considered normal.
I don't want her to have to change who she is for the world, I want the world to change the way it looks at people like her who are different. Just like any other parent, I just want my child to be happy and to feel loved and accepted.
There was a video going around among us SNPs a few months ago about our kids with the following message:
Don't be sad...
(See the video)
I think that pretty much sums it up. Ella Grace is the happiest person I know, always laughing and smiling. She's not sad and neither am I. As long as she is healthy and I see that smile on her face, all is right with the world.
And while I appreciate the recognition for "being such a good mom" I didn't sign up for this - I wouldn't change it, but I didn't sign up for it. It was assigned to me. God gave us a special child for a reason so I wear my SNP status like a badge of honor and do my best to fulfill the purpose given to me through Ella Grace.